Why a blog?

It's a question I've asked myself, why does a two and a half year old need her own blog? I've always wanted to create a place to keep Emelyn supports (she has a lot!) updated on her progress, but never quite devoted the time and energy to it. Part of me always felt funny about putting her developmental delays out on display for the world to see. For those who love and care for Emelyn, it doesn't bother me to share her latest progress or discuss her challenges, but for those who are just noisy and curious, I wanted to shut those people out. However, after learning of Emelyn's official diagnosis a few days ago, I feel like spreading the word is now in the best interest of her and others who may be affected. If I can help raise awareness for the DDX3X mutation and help other families find answers to their daughter's developmental delays, then I'm happy to put up with a few noisy and curious followers. Who knows, maybe one day they'll too help raise awareness. And for those who love, pray, and ask about Emelyn, I'll do my very best to keep you updated about her latest milestones and anything new we learn about her recent diagnosis.
Emelyn has a ton of supporters out there. We're grateful to
those we know and talk to regularly, as well as those we've
never met, but none the less, pray and ask about her.


No comments:

Post a Comment